Company name: The Patrick Wild Centre

Description: We are excited to announce the launch of our new online portal, the Patrick Wild Centre eHub, on the 10th October 2020, European Fragile X Awareness Day. The aim of the eHub is to collect detailed information about large groups of people with fragile X, the premutation and a comparison group using short, widely used surveys which will then be repeated every 2 years. The idea is to gradually build up a rich picture about how these conditions affect people …